Hi everyone, we wanted to let you know about Rainbow Trust Children’s Charity, a UK based charity that provides practical and emotional support to families who have a child that has a life threatening illness, such as DBA.
Rainbow Trust has a representative who visits London St Mary’s Hospital, in the same department where key DBA Doctor Josu De La Fuente is based. Her name is Claire Bickley and you can contact her via email at firstname.lastname@example.org, we have spoken to Claire and she will be attending the 2014 DBA UK Family Weekend, so if you come along you can meet her and get a better idea what the Rainbow Trust does.
Rainbow Trust also has departments based around England so you can speak to someone near you for support, see their teams on their website here.
Don’t forget you can book onto the Family Weekend here!