Happy New Year!

We at the DBA UK Committee want to wish all of our DBA patients and their families a very Happy New Year!

We will have some exciting developments for you during 2016, both in terms of ongoing research and the option for a transitional care package into adulthood. Additionally, some other things that we have been hard at work on, in order to better connect and support the DBA UK community.

We have had an amazing start to our financial year, with fundraising already over £54,000, we are well on our way to a target of £80,000 for financial year end in May 2016. If you have any planned fundraising activities, please let us know, whether you need some fundraising support from us, or just to let everyone know what you are up to! Feel free to send us pictures and links if you are in the news too, it’s great to see us having such active and campaigning DBA UK families.

We will also be opening booking soon for the 2016 DBA UK Family Weekend! This year it will be held over the 20th, 21st and 22nd of May,  once again at the PGL centre near Grantham in the East Midlands, please pop it in your diaries, we would love to have another record breaking attendance!

Keep an eye on our DBA UK Website, Facebook and Twitter pages for all the latest updates and please contact us if you have any questions –

Fundraising Support and Queries –
Martin Winter – martin.winter@diamondblackfan.org.uk

General Queries –
Kieran Teasdale – secretary@diamondblackfan.org.uk

All the best,
Your DBA UK Committee

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