Author Archives: Martin Winter

Happy New Year!

We at the DBA UK Committee want to wish all of our DBA patients and their families a very Happy New Year! We will have some exciting developments for you during 2016, both in terms of ongoing research and the … Continue reading

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Support from Rainbow Trust

Hello DBA UK families and patients, Our chair Leisa Batkin has been hard at work making links with Rainbow Trust, which also has close ties to Dr Josu De La Fuente at St Mary’s in London. They can offer vouchers … Continue reading

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DBA UK 2017 Calendar

Hello to all our DBA UK patients, families and supporters, we hope you are all well, this is just a quick update to let you know that we have a perfect present for anyone who is planning ahead on their … Continue reading

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Great North Run 2016!

Dear Friends and Families of DBA UK, After a hugely successful Great North Run 2015, the date for the 2016 GNR has been set as Sunday 11th September 2016, so pop it in your diaries and start training! Further to … Continue reading

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Novartis Pharmaceuticals Grant for DBA UK!

DBA UK are delighted to announce details of a GBP 15,000 grant towards the DBA family weekend in 2016. The grant has been awarded following our successful application in 2015. Novartis UK homepage

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St Mary’s Hospital Celebrates 1000 FerriScans

St Mary’s Hospital Celebrates 1000 FerriScans From Perth to Paddington! St Mary’s Hospital has become one of the first hospitals in Europe to reach a milestone of providing 1000 FerriScans (the Gold Standard MRI for measuring Liver Iron Concentration) for … Continue reading

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Hello DBA UK Families, we have been contacted today by someone from the VUE Cinema in Cheshire Oaks, north of Chester, to offer out tickets to attend their red carpet opening of their new IMAX screen, to see the new … Continue reading

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Gimme 5 Campaign!

At the recent DBA UK family conference, we highlighted a number of fundraising initiatives and it’s almost time to kick off the first one!…….GIMME 5! To celebrate the 15th anniversary of DBA UK, we are asking all DBA facebook users … Continue reading

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DBA UK Calendar

We have a request from one of our new committee members, Stacey Skepper, herself an adult DBA patient – “Hi all , I have a favour to ask. I am going to be putting together the DBA UK calendar this … Continue reading

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Mapping our DBA UK Family

Hello everyone, we would like to offer our DBA UK Families a way to get in touch with other families who live close by to them to better increase our support network. In order to do this in a way … Continue reading

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