Our Annual DBA UK Family Weekend is a significant cost to our charity at approximately £25,000 per year. Unfortunately, last minute cancellations last year cost the charity over £2,500. This is not how we wish to use your hard-earned fundraising money and donations. These funds could have been spent elsewhere. We totally understand that the nature of the condition can cause last minute change of plans but as a committee we have a responsibility to address this issue.
We recently launched a Facebook survey with regard to asking for a donation towards the cost of the weekend. Thank you to everybody who took the time to complete it. 90% of people agreed that we should ask for a minimum donation of £100 per room booked for the weekend. Consequently, we have decided to go with the majority vote. This donation will be non-refundable and we ask that your donation is made to DBA UK prior to the family weekend (see below). We will not accept your booking until we have received your donation.
If you are suffering some form of hardship, please contact either Leisa Batkin or Peter Redmond privately to discuss. We would rather have you at the family weekend than not.
We allow up to 2 additional attendees to join your immediate family group, such as grandparents who are coming to offer child/siblings care whilst parents can concentrate on the talks without distraction. Based on previous years spaces will be limited so we please ask that your additional attendees have a justifiable reason for attending the weekend or a charge of £100 per person may be asked to cover some of our costs. In the event of over subscription, priority will be given to patients and immediate families. If you have any queries about this, please contact Pete at Treasurer@diamondblackfan.org.uk or message him on Facebook.
How to make a donation to DBA UK
Send a cheque directly to ;
Treasurer DBA UK
La Grande Route de la Cote
Jersey Channel Islands
To make a direct bank transfer by BACS ;
Account name : Diamond Blackfan Anaemia Support Group UK
Bank : The Royal Bank of Scotland
Sort code : 16-20-30
Account number : 10068477
To book onto the DBA UK Family Weekend, please complete a booking form via this link –