Category Archives: Events

Global Bridges Amsterdam The DBA Symposium June 10th -12th

Global Bridges Amsterdam June 2019 Martin Winter, DBA UK (with contributions from our Research ambassador, Dr. Noémi Roy) This meeting was excellently organised.  It was very well attended, by clinicians, scientists and patient representatives from circa 25 countries, including China, France … Continue reading

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DBA UK Family Weekend Summary 2019!

A huge thank you to everyone who joined us at PGL Caythorpe for the 19th DBA UK Family Weekend for presentations from medical professionals, activities for the children and lots of conversations between families and patients affected by DBA. Below … Continue reading

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EuroDBA: Building Global Bridges (2nd symposium, October 2017)

The 2nd “EuroDBA: Building Global Bridges” meeting in Freiburg, Germany commenced on 5th October 2017. Over 115 clinicians, researchers or family support group representatives were in attendance, spanning 27 countries, including China.   The meeting represented an opportunity to share … Continue reading

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Congenital Anaemia Network – Family Day

Hello to all our DBA UK families, We just wanted to make you aware of an event that we as a community have been invited to, the Congenital Anaemia Network Family Day! It is being held on the 8th May … Continue reading

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IMAX for DBA UK!

Hello DBA UK Families, we have been contacted today by someone from the VUE Cinema in Cheshire Oaks, north of Chester, to offer out tickets to attend their red carpet opening of their new IMAX screen, to see the new … Continue reading

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