Category Archives: Events

DBA UK Family Weekend 2016 Summary

Hello to all our DBA UK Families and Friends, we hope that those of you who attended our Family Weekend event at PGL Caythorpe found it useful, informative and a place for new connections. For anyone who wasn’t able to … Continue reading

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Congenital Anaemia Network – Family Day

Hello to all our DBA UK families, We just wanted to make you aware of an event that we as a community have been invited to, the Congenital Anaemia Network Family Day! It is being held on the 8th May … Continue reading

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Great North Run 2016!

Dear Friends and Families of DBA UK, After a hugely successful Great North Run 2015, the date for the 2016 GNR has been set as Sunday 11th September 2016, so pop it in your diaries and start training! Further to … Continue reading

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IMAX for DBA UK!

Hello DBA UK Families, we have been contacted today by someone from the VUE Cinema in Cheshire Oaks, north of Chester, to offer out tickets to attend their red carpet opening of their new IMAX screen, to see the new … Continue reading

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Gimme 5 Campaign!

At the recent DBA UK family conference, we highlighted a number of fundraising initiatives and it’s almost time to kick off the first one!…….GIMME 5! To celebrate the 15th anniversary of DBA UK, we are asking all DBA facebook users … Continue reading

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Genetic Disorders UK Symposium 2015

Hello DBA UK families, this is a quick news post to let you know about an event that two of our committee members attended on the 6-7th March in London. The Genetic Disorders UK group, in partnership with Global Genes … Continue reading

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The Frozen Ball For DBA UK

Hello everyone, some more exciting fundraising news for you this evening, Sam Robinson from the DBA UK Committee has organised a Frozen Ball to raise funds for DBA UK.   How would your little prince or Princess like to meet … Continue reading

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UPDATE – No spaces left for Great North Run 2015!

UPDATE – Just a quick update to let you know that we have now filled all our DBA UK spaces in the Great North Run 2015! This is fantastic news to know we have such keen runners amongst us, June Kynoch … Continue reading

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EuroDBA Symposium Summary

A big thank you to Martin Winter who attended the EuroDBA Symposium in Frieberg, Germany recently (Update posts from the day can be seen here – Part 1 & Part 2). This was a huge success in getting together clinicians, … Continue reading

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The Rose Charity Ball for DBA UK

We are very excited to tell you about a great fundraising event to further the cause of DBA. The Rose family, who have a daughter with DBA, are holding a black tie charity ball in March 2015 to raise funds … Continue reading

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