Category Archives: Events

EuroDBA Symposium Day 1

[View the story “EuroDBA Symposium – Building Global Bridges” on Storify]

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Euro DBA Symposium

We are very excited to tell you about a world first meeting happening in Freiberg, Germany over September 19th and 20th, hosted by the EuroDBA Consortium. This is a global gathering of clinicians, researchers and patient advocates from 25 different countries, … Continue reading

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DBA UK Family Weekend 2014!

A huge thank you to everyone who came along to PGL Caythorpe for the 14th annual DBA UK Family Weekend and made it thoroughly enjoyable! We had around 160 people join us for some fantastic talks, activities and opportunities to … Continue reading

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Total Warrior 2014

This is a great update on the fundraising front to let you know about some incredibly brave people (including our own Chair, Leisa Batkin!) who are undertaking the Total Warrior event in June on behalf of DBA UK. The event … Continue reading

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Final call for GNR 2014!

This is a quick update to let you know we only have a couple of places left for the Great North Run 2014, so you need to act now if you want to take part! This year’s GNR takes place … Continue reading

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Raise Your Hand event for Rare Disease Day

Hi everyone, this is just a quick update to let you know about an event taking place in London for Rare Disease Day which is on the 28th February. This is part of a global event to raise awareness of rare … Continue reading

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MyBuilder.com’s Hero Project 2013

Thanks to Granny Christine Castle, tradesman James of Rothwell James has played Hero to the parents of an eight-year-old from Watford with a rare and life-threatening blood disorder, Diamond Blackfan Anaemia. On Thursday (Dec 5th) the big-hearted bathroom fitter has … Continue reading

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DBA UK Adult Meeting October 2013

DBA UK are pleased to announce we’ve had another great meeting of adult DBA patients over this past weekend and we are keen to hear your thoughts about future meetings! We opted for a London location again this time as … Continue reading

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Camp Sunshine Feedback – Part 2 – The Webb Family

In July this year, we were very proud and pleased to send two families on behalf of DBA UK, to Camp Sunshine in America for their DBA event which is held every other year. What follows is the second piece … Continue reading

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Camp Sunshine Feedback – Part 1 – The Rix Family

In July this year, we were very proud and pleased to send two families on behalf of DBA UK, to Camp Sunshine in America for their DBA event which is held every other year. What follows is feedback from the … Continue reading

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