Category Archives: In the news

Genetic Alliance UK report on genome editing – “Genome editing technologies: the patient perspective”

Interesting report on genome editing from our friends at Genetic Alliance UK. Patients overwhelmingly support the use of genome editing technologies in research, where that research is focused on treating medical conditions.   Further details can be found here: https://www.geneticalliance.org.uk/news-events/news/report-launch-genome-editing-the-patient-perspective/

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Great North Run 2016!

Dear Friends and Families of DBA UK, After a hugely successful Great North Run 2015, the date for the 2016 GNR has been set as Sunday 11th September 2016, so pop it in your diaries and start training! Further to … Continue reading

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St Mary’s Hospital Celebrates 1000 FerriScans

St Mary’s Hospital Celebrates 1000 FerriScans From Perth to Paddington! St Mary’s Hospital has become one of the first hospitals in Europe to reach a milestone of providing 1000 FerriScans (the Gold Standard MRI for measuring Liver Iron Concentration) for … Continue reading

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Genetic Disorders UK Symposium 2015

Hello DBA UK families, this is a quick news post to let you know about an event that two of our committee members attended on the 6-7th March in London. The Genetic Disorders UK group, in partnership with Global Genes … Continue reading

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DBA UK is now registered with ENERCA

DBA UK has processed a registration for the European Network for Rare and Congenital Anaemias (ENERCA). This will hopefully give us greater Europeans connections, expand the scope of DBA UK as well as future research and care programmes. You can … Continue reading

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UPDATE – No spaces left for Great North Run 2015!

UPDATE – Just a quick update to let you know that we have now filled all our DBA UK spaces in the Great North Run 2015! This is fantastic news to know we have such keen runners amongst us, June Kynoch … Continue reading

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Genetic Disorders UK grant for DBA UK!

DBA UK are delighted to announce details of a GBP 10,000 grant towards the DBA family weekend in 2016.  The grant has been awarded by Jeans for Genes Day / Genetic Disorders UK, following our successful application/presentation in 2014. Jeans … Continue reading

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EuroDBA Symposium Day 1

[View the story “EuroDBA Symposium – Building Global Bridges” on Storify]

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Euro DBA Symposium

We are very excited to tell you about a world first meeting happening in Freiberg, Germany over September 19th and 20th, hosted by the EuroDBA Consortium. This is a global gathering of clinicians, researchers and patient advocates from 25 different countries, … Continue reading

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Great North Run 2014

We hope you were all watching the Great North Run on Sunday 7th September, we had 23 runners taking part on behalf of DBA UK! Did you spot our running vests in the crowd? Based on current figures, our runners have … Continue reading

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