Category Archives: In the news

Ice Bucket Challenge

Hi everyone, as you have likely seen online, many people worldwide are currently taking part in the ALS Ice Bucket Challenge, luckily for DBA UK some very kind people have chosen to use their nomination to support DBA UK. We … Continue reading

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Kids With Cameras

We just wanted to let everyone know about a programme that was shown on ITV last night, “Kids With Cameras”. It featured one young boy called Samuel who has Diamond Blackfan Anaemia and tells his story from his perspective of … Continue reading

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Final call for GNR 2014!

This is a quick update to let you know we only have a couple of places left for the Great North Run 2014, so you need to act now if you want to take part! This year’s GNR takes place … Continue reading

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Raise Your Hand event for Rare Disease Day

Hi everyone, this is just a quick update to let you know about an event taking place in London for Rare Disease Day which is on the 28th February. This is part of a global event to raise awareness of rare … Continue reading

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MyBuilder.com’s Hero Project 2013

Thanks to Granny Christine Castle, tradesman James of Rothwell James has played Hero to the parents of an eight-year-old from Watford with a rare and life-threatening blood disorder, Diamond Blackfan Anaemia. On Thursday (Dec 5th) the big-hearted bathroom fitter has … Continue reading

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Great North Run Update

A message from June Kynoch, our Great North Run co-ordinator – “This year’s Great North Run gave us 25 registered runners, unfortunately 2 had to drop out due to injuries.  I do hope that you have recovered.  And am sure … Continue reading

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DBA UK Family on The One Show

This is just a quick post to let you know that a member of our DBA UK family was featured on The One Show on BBC One on  5th Sept 2013, the Fletchers talk about their experience with DBA and … Continue reading

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Thames Path Challenge 2013 Booking and London 2 Brighton 2013 Results

Exciting news on the fundraising front from Action Challenge, registration is now open for the Thames Path Challenge 2013, 100, 50 or 25 KM routes walking or running on 14th/15 Sept and we are registered so you can take part on … Continue reading

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WellChild Awards 2013

Nominations are now open for the WellChild 2013 awards! This annual event celebrates some of the UK’s most inspirational children and young people who every day live with the consequences of serious illness. These awards also recognise the dedication of the … Continue reading

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Cork Mini Marathon

Some great news of recent fund raising in Ireland from the Cork Mini-Marathon, Michelle Martin, her mum Catherine and a huge amount of their friends and family took part in the Cork Mini Marathon on Sunday 16th Sept. They were … Continue reading

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