Category Archives: Membership

DBA UK Family Weekend 2016 Summary

Hello to all our DBA UK Families and Friends, we hope that those of you who attended our Family Weekend event at PGL Caythorpe found it useful, informative and a place for new connections. For anyone who wasn’t able to … Continue reading

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Final Preparations for Family Weekend 2016

Dear families and friends of DBA UK, We are now in the final preparation stages for the 2016 Family Weekend starting on Friday 20th May. We still have a few rooms left, and we would love to fill them all, so … Continue reading

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DBA UK Family Weekend 2016 – BOOKING OPEN

DBA UK Family Weekend 2016 booking is now OPEN! The weekend will include the charity AGM which will be on Sunday 22nd May. There’s lots to read on what happened at previous Family Weekends. You can use our new online booking … Continue reading

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IMAX for DBA UK!

Hello DBA UK Families, we have been contacted today by someone from the VUE Cinema in Cheshire Oaks, north of Chester, to offer out tickets to attend their red carpet opening of their new IMAX screen, to see the new … Continue reading

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Mapping our DBA UK Family

Hello everyone, we would like to offer our DBA UK Families a way to get in touch with other families who live close by to them to better increase our support network. In order to do this in a way … Continue reading

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DBA UK Family Weekend 2015!

We had a great Family Weekend this year for the 15th anniversary of DBA UK, with around 140 attendees coming to join us for medical talks, children’s activities and most importantly, meeting others with Diamond Blackfan Anaemia.   Most people … Continue reading

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DBA UK Official Charity Video

DBA UK has put together a short video about Diamond Blackfan Anaemia and what the charity does, featuring a number of DBA patients from around the UK. Please note that this video is a brief summary of DBA and the charity in general. … Continue reading

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Euro DBA Symposium

We are very excited to tell you about a world first meeting happening in Freiberg, Germany over September 19th and 20th, hosted by the EuroDBA Consortium. This is a global gathering of clinicians, researchers and patient advocates from 25 different countries, … Continue reading

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DBA UK Family Weekend 2014!

A huge thank you to everyone who came along to PGL Caythorpe for the 14th annual DBA UK Family Weekend and made it thoroughly enjoyable! We had around 160 people join us for some fantastic talks, activities and opportunities to … Continue reading

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DBA UK Adult Meeting October 2013

DBA UK are pleased to announce we’ve had another great meeting of adult DBA patients over this past weekend and we are keen to hear your thoughts about future meetings! We opted for a London location again this time as … Continue reading

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