Category Archives: Membership

Camp Sunshine Feedback – Part 2 – The Webb Family

In July this year, we were very proud and pleased to send two families on behalf of DBA UK, to Camp Sunshine in America for their DBA event which is held every other year. What follows is the second piece … Continue reading

Posted in Conference, Events, Membership, Research and Medical, The Charity | Leave a comment

Camp Sunshine Feedback – Part 1 – The Rix Family

In July this year, we were very proud and pleased to send two families on behalf of DBA UK, to Camp Sunshine in America for their DBA event which is held every other year. What follows is feedback from the … Continue reading

Posted in Conference, Events, Membership, Research and Medical, The Charity | 1 Comment

Funky Pumpers

Hi everyone, a quick note from the DBA UK committee to let you know about another discount we have secured for our DBA family. This is for a website called Funky Pumpers, who produce comfortable and colourful pump bags and … Continue reading

Posted in Membership, The Charity | Leave a comment

Medic Alert Jewellery

Hi everyone, just a quick post to let you know that DBA UK are very pleased to have secured a discount with a medical bracelet company called The ID Band Company. They provide a wide variety of medic alert bracelets, … Continue reading

Posted in Membership, The Charity | Leave a comment

DBA UK Family on The One Show

This is just a quick post to let you know that a member of our DBA UK family was featured on The One Show on BBC One on  5th Sept 2013, the Fletchers talk about their experience with DBA and … Continue reading

Posted in In the news, Membership, The Charity | Leave a comment

Thames Path Challenge 2013 Booking and London 2 Brighton 2013 Results

Exciting news on the fundraising front from Action Challenge, registration is now open for the Thames Path Challenge 2013, 100, 50 or 25 KM routes walking or running on 14th/15 Sept and we are registered so you can take part on … Continue reading

Posted in Events, Fundraising, In the news, Membership | Leave a comment

DBA UK Family Weekend 2013!

A huge thank you to everyone who came along to PGL Caythorpe for the 13th annual DBA UK Family Weekend and made it our highest attended so far! We had nearly 170 people join us for some fantastic talks, activities … Continue reading

Posted in Conference, Membership, Research and Medical, Social Welfare, The Charity | 1 Comment

The DBA UK Committee needs you!

With this year’s Family Weekend fast approaching (17th-19th May) this is a final appeal for anyone who would like to join the DBA UK committee for 2013-14, to further the cause of DBA UK and support it’s members. The committee … Continue reading

Posted in Conference, Membership, The Charity | Leave a comment

DBA UK Adult Meeting March 2013 a success!

Hayley Smith (Adult Patient Liaison) has written us a piece about the latest DBA Adult Meeting –    This weekend saw the second DBA Adult meeting take place at Burleigh Court, Loughborough. Despite the snow, everyone arrived mid morning, where we … Continue reading

Posted in Adult Meeting, Events, Membership | Leave a comment

Win a trip to Camp Sunshine

DBA UK is pleased to offer it’s members the opportunity to travel to Camp Sunshine in the USA to take part in the bi-annual USA DBA Program, for 2 families, taking part from the 21st to the 26th July 2013. … Continue reading

Posted in Conference, Events, Membership, Uncategorized | Leave a comment