- Jeans for Genes Day/Genetic Disorders UK Grant for DBA UK
- Great North Run (The World’s Biggest Half Marathon) 2017
- 2017 Family Weekend BOOKING NOW OPEN
- Genetic Alliance UK report on genome editing – “Genome editing technologies: the patient perspective”
- Answering questions about rare inherited anaemia!
- DBA UK Family Weekend 2016 Summary
- Congenital Anaemia Network – Family Day
- Final Preparations for Family Weekend 2016
- DBA UK Funding CRISPR Gene Research
- DBA UK Family Weekend 2016 – BOOKING OPEN
- Happy New Year!
- Support from Rainbow Trust
- DBA UK 2017 Calendar
- Great North Run 2016!
- Novartis Pharmaceuticals Grant for DBA UK!
- St Mary’s Hospital Celebrates 1000 FerriScans
- IMAX for DBA UK!
- Gimme 5 Campaign!
- DBA UK Calendar
- Mapping our DBA UK Family
News by category
Category Archives: Social Welfare
We at the DBA UK Committee want to wish all of our DBA patients and their families a very Happy New Year! We will have some exciting developments for you during 2016, both in terms of ongoing research and the … Continue reading →
Hello DBA UK families, this is a quick news post to let you know about an event that two of our committee members attended on the 6-7th March in London. The Genetic Disorders UK group, in partnership with Global Genes … Continue reading →
A huge thank you to everyone who came along to PGL Caythorpe for the 14th annual DBA UK Family Weekend and made it thoroughly enjoyable! We had around 160 people join us for some fantastic talks, activities and opportunities to … Continue reading →
Hello everyone, we just wanted to let you know about a free e-book you can download from the Rare Genomics Institute, the book is called “Rare Diseases – Diagnosis, Therapies and Hope”. You can download this book for free here … Continue reading →
Hi everyone, we wanted to let you know about Rainbow Trust Children’s Charity, a UK based charity that provides practical and emotional support to families who have a child that has a life threatening illness, such as DBA. Rainbow Trust … Continue reading →
Thanks to Granny Christine Castle, tradesman James of Rothwell James has played Hero to the parents of an eight-year-old from Watford with a rare and life-threatening blood disorder, Diamond Blackfan Anaemia. On Thursday (Dec 5th) the big-hearted bathroom fitter has … Continue reading →
A huge thank you to everyone who came along to PGL Caythorpe for the 13th annual DBA UK Family Weekend and made it our highest attended so far! We had nearly 170 people join us for some fantastic talks, activities … Continue reading →
Another snippet of Social Welfare information, you may also be entitled to a free tax disc for your car if you are claiming the higher rate of the mobility component of Disability Living Allowance. Claiming a free tax disc can be … Continue reading →
Just a quick post to let you know that if your family is claiming Disability Living Allowance, you are able to apply for a Cinema Exhibitors’ Association Card. This is a national card that can be used to verify that the holder … Continue reading →
Leisa Batkin kindly wrote a social welfare and benefits guide for us, taken from her personal experiences having a DBA child. Although this is written very much from a personal perspective, she suggests that many other patients can benefit in … Continue reading →