Category Archives: The Charity

EuroDBA: Building Global Bridges (2nd symposium, October 2017)

The 2nd “EuroDBA: Building Global Bridges” meeting in Freiburg, Germany commenced on 5th October 2017. Over 115 clinicians, researchers or family support group representatives were in attendance, spanning 27 countries, including China.   The meeting represented an opportunity to share … Continue reading

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DBA UK Family Weekend 2016 Summary

Hello to all our DBA UK Families and Friends, we hope that those of you who attended our Family Weekend event at PGL Caythorpe found it useful, informative and a place for new connections. For anyone who wasn’t able to … Continue reading

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Final Preparations for Family Weekend 2016

Dear families and friends of DBA UK, We are now in the final preparation stages for the 2016 Family Weekend starting on Friday 20th May. We still have a few rooms left, and we would love to fill them all, so … Continue reading

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DBA UK Funding CRISPR Gene Research

Hello to all our DBA UK Patients, Families and Friends, we wanted to update you regarding some exciting research we have agreed to fund. Firstly though, a note from our Chair, Leisa Batkin – “For every cake baked… race ran…. river … Continue reading

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Mapping our DBA UK Family

Hello everyone, we would like to offer our DBA UK Families a way to get in touch with other families who live close by to them to better increase our support network. In order to do this in a way … Continue reading

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DBA UK Family Weekend 2015!

We had a great Family Weekend this year for the 15th anniversary of DBA UK, with around 140 attendees coming to join us for medical talks, children’s activities and most importantly, meeting others with Diamond Blackfan Anaemia.   Most people … Continue reading

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Agenda for the Family Weekend 2015

Hello all, With the Family Weekend fast approaching we are releasing a current version of the agenda to give you a better idea of what to expect – Please bear in mind that this is still subject to change, but … Continue reading

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Genetic Disorders UK Symposium 2015

Hello DBA UK families, this is a quick news post to let you know about an event that two of our committee members attended on the 6-7th March in London. The Genetic Disorders UK group, in partnership with Global Genes … Continue reading

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DBA UK is now registered with ENERCA

DBA UK has processed a registration for the European Network for Rare and Congenital Anaemias (ENERCA). This will hopefully give us greater Europeans connections, expand the scope of DBA UK as well as future research and care programmes. You can … Continue reading

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DBA UK Online Shop

Hi everyone, this is an update post on our shop situation, we had previously opened an on-line store with Zazzle, however feedback made it clear that the shipping costs were too high to pursue the relationship with Zazzle. As such … Continue reading

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