Category Archives: The Charity

DBA UK Needs You!

DBA UK is a charity run by volunteers, we are all patients, or family members of patients, we all work hard throughout the year to help run events like the Family Weekend in May and also Adult Patient Meetings to … Continue reading

Posted in The Charity | Leave a comment

Genetic Disorders UK grant for DBA UK!

DBA UK are delighted to announce details of a GBP 10,000 grant towards the DBA family weekend in 2016.  The grant has been awarded by Jeans for Genes Day / Genetic Disorders UK, following our successful application/presentation in 2014. Jeans … Continue reading

Posted in Fundraising, In the news, The Charity | Leave a comment

DBA UK Family Weekend 2015 – BOOKING OPEN

DBA UK Family Weekend 2015 booking is now OPEN! The weekend will include the AGM which will be on Sunday 17th May. There’s lots to read on what happened at previous Family Weekends. You can use our new online booking form … Continue reading

Posted in Conference, The Charity | Leave a comment

EuroDBA Symposium Summary

A big thank you to Martin Winter who attended the EuroDBA Symposium in Frieberg, Germany recently (Update posts from the day can be seen here – Part 1 & Part 2). This was a huge success in getting together clinicians, … Continue reading

Posted in Events, Research and Medical, The Charity | Leave a comment

EuroDBA Symposium Day 1

[View the story “EuroDBA Symposium – Building Global Bridges” on Storify]

Posted in Events, In the news, Research and Medical, The Charity | 1 Comment

Euro DBA Symposium

We are very excited to tell you about a world first meeting happening in Freiberg, Germany over September 19th and 20th, hosted by the EuroDBA Consortium. This is a global gathering of clinicians, researchers and patient advocates from 25 different countries, … Continue reading

Posted in Events, In the news, Membership, Research and Medical, The Charity | Leave a comment

DBA UK Zazzle Store Now Open!

Hello everyone, this is a quick post to let you know the DBA UK now has a store on the website Zazzle! This website allows us to put our designs onto a wide variety of products and sell them with … Continue reading

Posted in Fundraising, The Charity | Leave a comment

DBA UK Family Weekend 2014!

A huge thank you to everyone who came along to PGL Caythorpe for the 14th annual DBA UK Family Weekend and made it thoroughly enjoyable! We had around 160 people join us for some fantastic talks, activities and opportunities to … Continue reading

Posted in Conference, Events, Fundraising, Membership, Research and Medical, Social Welfare, The Charity | Leave a comment

Camp Sunshine Feedback – Part 2 – The Webb Family

In July this year, we were very proud and pleased to send two families on behalf of DBA UK, to Camp Sunshine in America for their DBA event which is held every other year. What follows is the second piece … Continue reading

Posted in Conference, Events, Membership, Research and Medical, The Charity | Leave a comment

Just Giving – Text For DBA UK!

Some excellent news to boost the fundraising efforts today, you can now text donations to DBA UK via JustGiving. It’s free, easy to do and every penny goes straight to DBA UK! DBA UK is proud to join other charities in … Continue reading

Posted in Fundraising, The Charity | Leave a comment