Category Archives: Uncategorized

2017 Family Weekend BOOKING NOW OPEN

BOOKING IS NOW OPEN for our 17th Annual DBA Family Weekend Friday 19th May to Sunday 21st May 2017 There’s lots to read on what happened at previous Family Weekends. You can use our ONLINE BOOKING FORM here; http://diamondblackfan.org.uk/booking-form/ Or you can … Continue reading

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Support from Rainbow Trust

Hello DBA UK families and patients, Our chair Leisa Batkin has been hard at work making links with Rainbow Trust, which also has close ties to Dr Josu De La Fuente at St Mary’s in London. They can offer vouchers … Continue reading

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DBA UK Family Weekend 2015!

We had a great Family Weekend this year for the 15th anniversary of DBA UK, with around 140 attendees coming to join us for medical talks, children’s activities and most importantly, meeting others with Diamond Blackfan Anaemia.   Most people … Continue reading

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Burleigh Court in Loughborough offering DBA UK rates

Hello everyone, this is just a quick post to let you know that Burleigh Court Hotel in Loughborough, Leicestershire is offering exclusive rates for members of DBA UK for 2015. Burleigh Court has selected DBA UK as one of their … Continue reading

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EuroDBA Symposium Day 2

[View the story “EuroDBA Symposium – Building Global Bridges – Day 2” on Storify]

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DBA Care Pathway Preview

Hi everyone, we’re pleased to announce that Dr Josu De La Fuente is in the final stages of releasing his Care Pathway for Diamond Blackfan Anaemia. He is happy for us to release it to you in it’s current form, … Continue reading

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DBA UK Adult Meeting October 2013

DBA UK are pleased to announce we’ve had another great meeting of adult DBA patients over this past weekend and we are keen to hear your thoughts about future meetings! We opted for a London location again this time as … Continue reading

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Win a trip to Camp Sunshine

DBA UK is pleased to offer it’s members the opportunity to travel to Camp Sunshine in the USA to take part in the bi-annual USA DBA Program, for 2 families, taking part from the 21st to the 26th July 2013. … Continue reading

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