- COVID-19 Guidance for Patients with Diamond Blackfan anaemia
- Global Bridges Amsterdam The DBA Symposium June 10th -12th
- DBA UK Family Weekend Summary 2019!
- Family Weekend 2019 Booking Now Open
- DBA UK now on Amazon Smile
- EuroDBA: Building Global Bridges (2nd symposium, October 2017)
- Jeans for Genes Day/Genetic Disorders UK Grant for DBA UK
- Great North Run (The World’s Biggest Half Marathon) 2017
- 2018 Family Weekend
- Genetic Alliance UK report on genome editing – “Genome editing technologies: the patient perspective”
- Answering questions about rare inherited anaemia!
- Congenital Anaemia Network – Family Day
- DBA UK Funding CRISPR Gene Research
- Support from Rainbow Trust
- Novartis Pharmaceuticals Grant for DBA UK!
- St Mary’s Hospital Celebrates 1000 FerriScans
- IMAX for DBA UK!
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This document is a collaboration between the Haemoglobinopathy Co-ordinating Centres in England, offering guidance to patient with Diamond Blackfan anaemia (DBA) and their carers. It has been reviewed and agreed by representatives of the Haemoglobinopathy Co-ordinating Centres in England and … Continue reading
DBA UK Family Weekend 2019 booking is now OPEN! The weekend will include the charity AGM which will be on Sunday 19th May. You can use our new online booking form here – https://goo.gl/forms/cPhCPxPXbqmSUOLg1 This year’s DBA UK Family Weekend … Continue reading
BOOKING IS NOW OPEN for our 18th Annual DBA Family Weekend Friday 8th June to Sunday 10th June 2018 You can use our ONLINE BOOKING FORM here; http://diamondblackfan.org.uk/booking-form/ Or you can use the old style invitation and booking form, which you … Continue reading