If your life has been personally affected by DBA, you’ve come to the right place! We can help.
All you have to do is give us a call on 0845 094 1548.
Our UK family and patient support phone line is manned by Pete, our Charity Treasurer who also kindly volunteers in this role. Pete’s son Joe has DBA who was transfusion dependent before having a sibling Bone Marrow Transplant in 2012.
We work closely with clinicians at St Mary’s Hospital in London to make sure we stay as close as possible to the latest scientific discoveries as well as patient care.
If you feel like you’re not getting the support you require, please go to our Asking for Help page off for a 2nd Opinion Letter and more information about PALS (Patient Advice and Liaison Service).