At DBA UK we’d love to hear from all UK DBA patients. To register please tell us as much or as little as you would like from this list:
Name, address, home phone, mobile phone, email, patient’s name, patient’s date of birth, name of consultant and hospital, current treatment (including iron chelation if applicable), genetic marker (if known).
Please note that we will treat all details in the utmost confidence and never share them without your explicit consent. Also, it’s important to realise that we’re not a medical organisation but a support charity and we do not use any of these details for medical purposes. The reason we like to collect basic patient information is in case you would like to be put in touch with others in a similar position or similar location to yourself, with explicit consent given by both parties before any information is shared.