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Useful Links

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US/Worldwide Facebook group

 Diamond Blackfan Anaemia Foundation, USA

DBA Canada

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  • Supported by Jeans for Genes

  • Latest news

    • DBA UK now on Amazon Smile
    • EuroDBA: Building Global Bridges (2nd symposium, October 2017)
    • Jeans for Genes Day/Genetic Disorders UK Grant for DBA UK
    • Great North Run (The World’s Biggest Half Marathon) 2017
    • 2018 Family Weekend
    • Genetic Alliance UK report on genome editing – “Genome editing technologies: the patient perspective”
    • Answering questions about rare inherited anaemia!
    • Congenital Anaemia Network – Family Day
    • DBA UK Funding CRISPR Gene Research
    • Support from Rainbow Trust
    • Novartis Pharmaceuticals Grant for DBA UK!
    • St Mary’s Hospital Celebrates 1000 FerriScans
    • IMAX for DBA UK!

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  • DBA UK Map

    Are you a DBA UK Patient or Family? Join our DBA UK Google Map to find others with DBA near you!
    Join the DBA UK Map! For details on how to join, Click Here

  • Fundraising Total

    Ask us if you need help with fundraising! With the start of our new fundraising year following the DBA UK Family Weekend in June 2018, we have set a new target of £80,000 for the coming year.

    This will help to fund future Family Weekends, Adult Patient Meetings, key research projects and better worldwide medical collaboration to further our understanding of DBA. Thanks for your continued support!

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