Skip to content
Skip to content
  • Support
    • Get in touch
    • Join DBA UK
    • Conference
  • Research
  • Hope
    • Donate now
    • Sponsored events
    • Corporate donors
  • What is DBA?
    • What is DBA?
    • Newly diagnosed
    • Transfusion therapy
    • Iron chelation
    • Corticosteroid treatment
    • Stem cell transplant
    • Congenital abnormalities
  • About DBA UK
    • About DBA UK
    • DBA UK Committee
    • DBA UK Governance
  • Contact us
  • DBA UK Shop
  • Useful Info
    • Welfare and Education
    • Disability and Employment
  • Resources

Useful Links

DBA UK Facebook page

DBA UK Patients and Families Facebook group

DBA UK Adult Patient Group

DBA UK Fundraising Facebook group

US/Worldwide Facebook group

 Diamond Blackfan Anaemia Foundation, USA

DBA Canada

Comments are closed.

  • Supported by Jeans for Genes

  • Latest news

    • COVID-19 Guidance for Patients with Diamond Blackfan anaemia
    • Global Bridges Amsterdam The DBA Symposium June 10th -12th
    • DBA UK Family Weekend Summary 2019!
    • Family Weekend 2019 Booking Now Open
    • DBA UK now on Amazon Smile
    • EuroDBA: Building Global Bridges (2nd symposium, October 2017)
    • Jeans for Genes Day/Genetic Disorders UK Grant for DBA UK
    • Great North Run (The World’s Biggest Half Marathon) 2017
    • 2018 Family Weekend
    • Genetic Alliance UK report on genome editing – “Genome editing technologies: the patient perspective”
    • Answering questions about rare inherited anaemia!
    • Congenital Anaemia Network – Family Day
    • DBA UK Funding CRISPR Gene Research
    • Support from Rainbow Trust
    • Novartis Pharmaceuticals Grant for DBA UK!
    • St Mary’s Hospital Celebrates 1000 FerriScans
    • IMAX for DBA UK!

  • News by category

    • Conference (3)
    • Events (5)
    • Fundraising (6)
    • In the news (2)
    • Membership (1)
    • Research and Medical (6)
    • The Charity (3)
    • Uncategorized (4)

  • Contact

    Donate

  • DBA UK Map

    Are you a DBA UK Patient or Family? Join our DBA UK Google Map to find others with DBA near you!
    Join the DBA UK Map! For details on how to join, Click Here

  • Fundraising Total

    Ask us if you need help with fundraising! With the start of our new fundraising year following the DBA UK Family Weekend in May 2019, we have set a continuing target of £80,000 for the coming year.

    This will help to fund future Family Weekends, Adult Patient Meetings, key research projects and better worldwide medical collaboration to further our understanding of DBA. Thanks for your continued support!

  • Connect with us for the latest DBA UK news –



    Follow @DBA_UK

  • DBA UK is UK Registered Charity number 1083179

  • Thanks to Ariotek for providing the web hosting for the charity
© 2020 - DBA UK - diamondblackfan.org.uk