DBA UK Committee

The charity is managed by an Executive Committee, as follows as elected at the May 2019 AGM. Click on a committee member’s name to send a direct email to them.

10341562_790397097651598_860270750628572624_nLeisa Batkin, Chair.
I am 43 and I live in Leeds with my husband and our 4 children. Our youngest, Christie is 4 and was diagnosed with DBA when she was 3 months old. She is currently on regular blood transfusions and chelation therapy.
I have joined the committee to help and support other families and have an interest in social welfare of our families and work in Health.

1798680_790396890984952_3281365347138229429_nJayson Whitaker, Deputy Chair.
I am one of the founder members of the charity and current support group. My son Charlie age 16 had transfusion dependent DBA, he had a transplant which failed after 10 years, so has had a second transplant 1 year ago. I have 3 other children who do not have DBA, I have been involved in DBA UK for about 14 years, my wife Michelle is actively involved in the conference organisation each year and has been for many years.

10370806_790397640984877_1305240964394379596_nPeter Redmond, Treasurer.
I live in Jersey with my wife Trish and two children Joe 7 DBA and Holly 11. Joe was transfusion dependent and did not respond to steroids. Amazingly Holly was a perfect match for Joe so in 2012 he had a very successful Bone Marrow Transplant. We are now a very lucky, hospital-free family. I have been actively involved in the DBA Committee for the last 4 years and find it hugely rewarding to be able to help and support other families through their own DBA journeys

10363735_790397277651580_1376900635140152775_n

Martin Winter, Fundraising Support
I live in Billericay, Essex with my wife Sarah and daughter Olivia, who was born in 2010 and was diagnosed with DBA at 6 weeks of age. Olivia remains transfusion dependent (every 4 weeks) after a failed steroid trial. We are currently awaiting a suitable match to proceed with a Bone Marrow Transplant. I have joined the committee to help provide continued support and hope to Olivia and our wider DBA family. My role will also focus on fund raising co-ordination.

Helen TillHelen Till, Education and Welfare Support.
I live just outside Chester, in the North West of England, with my husband and two children.  Lexie is 12 and DBA free, Drew aged 5 has DBA and was transfusion dependant (with 24/7 IV desferal chelation) until June 2014 when he underwent a bone marrow transplant at RMCH with his sister as a donor. I have a personal interest in education, especially the transition from pre-school to reception and I have a good overview of primary education and SEN through my role as a school governor for the past 4 years.

Joanne Hubbard, Fundraising Support (Awaiting image)
I live in Redcar with my husband Paul and three children Jack, William and Ruby. Ruby, 4 year old has DBA and was diagnosed at six weeks. Ruby is blood transfusion dependent, every four weeks and takes Exjade for iron chelation. Ruby had a steroid trial but failed to respond to steroids.

Lindsey Watson, Adult Patient Liaison
(Awaiting image & bio)

Comments are closed.