The UK's Diamond
Blackfan Anaemia

Delivering Support, Research and Hope

DBAS UK brings families together

We share experiences, communicate the latest medical information and raise funds to support those with Diamond Blackfan Anaemia Syndrome in the UK

About Us

DBAS UK is the UK’s Diamond Blackfan Anaemia Syndrome Charity.  We’re a registered charity run by volunteers, dedicated to providing a support network to families facing Diamond Blackfan Anaemia Syndrome (DBAS), a rare genetic disorder.

We bring families together to share experiences, offer hope, and fund research for a better future.

Through our website, information resources, and annual conference, we provide vital support and connect you with the DBAS community in the UK.


Living with DBAS can feel isolating, but we are here to support.

We offer a library of resources, including information leaflets, a support line, and access to the latest medical research. Our website serves as a central hub for everything DBAS-related.

Connect with other families facing DBAS, find answers to your questions, and gain a sense of community through our supportive network.

Fundraising & Donations

Your donation can make a real difference for families living with DBAS.

DBAS UK relies on the generosity of our supporters to fund vital research projects, create a national patient registry, and develop consistent care standards across the UK.

Every contribution, big or small, helps us bring hope and support to the DBAS community.

Donate today and be a part of creating a brighter future for those affected by DBAS.


DBAS UK is at the forefront of DBAS research and continually fund innovative projects to improve treatments and find a cure for DBAS.

By establishing a UK patient registry, we’ll create a central resource for doctors and document each case, leading to better care and future research opportunities.

We’re also developing a UK Standard of Care document to ensure consistent and high-quality treatment for all DBAS patients nationwide.

Annual Conference

Bringing Families, Researchers and Medical Professionals Together. By uniting our key stakeholders, our annual conference facilitates collaboration, research, fundraising, support, and so much more!

Make a Difference Today!

By donating to DBAS UK, you will help fund important research into the underlying causes of Diamond Blackfan Anaemia Syndrome, in the hope we can soon find a cure. 

Your donations also help support children with DBAS and their families.

Latest News

DBAS 2024 Guidelines

For all asking for the new patient guidelines here’s our digital copy for 2024. These are international guidelines so applicable to our international friends and...

Same mission, bold new vision.

Have you noticed our fresh look? We’re excited about our rebrand, but it’s more than a logo change. It’s about a renewed focus on the...

DBAS UK Family Weekend 2024 Photobook