The UK's Diamond
Blackfan Anaemia
Syndrome
Charity

For Medical Professionals

DBA UK works closely with top medical professionals around the world, especially the UK

Keep Up To Date

We stay abreast of the latest research developments to keep DBAS UK members informed.

DBAS UK has in the past funded research, and on an ongoing basis, we continue to look for appropriate funding opportunities. 

In particular, we hope in the near future to support more research on the mechanism by which steroids help some DBAS patients, and to support an updated UK DBAS registry.

DBAS Resources Online

A good place to start searching the internet (including PubMed) for research articles is The US National Library of Medicine. Type in “Diamond Blackfan Anaemia” into the search box to begin.

A good summary of recent published DBAS research can be found on the DBASF website.

You can find out the latest news on DBAS Research by viewing our posts in the Research and Medical category.

The DBAS Care Pathway

Designed to help clinicians with new DBAS patients, this pathway will help guide you.

Please note –  This is not yet medically published and as such you are under no obligation to follow it, but it has been developed by Dr. Josu De La Fuente.

Are you a health professional who wants to help us?

We have modest pots of research funding available. Our grants are awarded after peer review by our ambassadors and subject to strict criteria.

DBAS UK Advocates

Specialist experts - context needed - who are they? what does their role entail? how did they find out about DBAS UK? Can i contact them for help?

Josu De La Fuente

Consultant paediatric haematologist at St Mary’s Paddington and at Imperial College, medical advisor to DBAS UK

Dr. Elspeth Payne

Senior Clinical Researcher at University College London Cancer Centre

Dr. Noemi Roy

Consultant Haematologist, Oxford University Hospitals; Honorary Senior Clinical Lecturer at University of Oxford