For all asking for the new patient guidelines here’s our digital copy for 2024.
These are international guidelines so applicable to our international friends and families
Key points around:
- Blood levels
- Steroid trial length
- Growth hormone usage
Post-BMT people need surveillance and encouragement to keep connected to their patient’s bodies – you need us more than ever to keep up to date with your health needs.
BMT is NOT a cure and you still need to be monitored for other issues.
A change in language
It’s not remission- it’s treatment independence and these people need care, support and constant monitoring.
Neurodivergence is now becoming more important and DBAS will now start to collect data on this so tell us your stories.
